Top picture: Our sleepy little guy while we were at Lagoon!
The bottom three pictures: Benjamin at the hospital. The middle two pictures were at one of our many trips to the ER for his fever work-up. He is just becoming aware of his port on his tummy. The bottom picture was a good day in the clinic just before he received his treatment. He had just discovered this hand print toy in the exam room!
We are thrilled and feel so grateful! We finished week 46 of 52 today! Only two more treatments assuming everything continues to go well! Benjamin was very happy and didn't seem to even flinch when the nurse poked him to access his port. Chemotherapy was quick and painless today and we feel thankful. Now the plan is for his next treatment again in three more weeks, which will be week 49. Then three weeks after that will be the final treatment on week 52! One whole year of chemotherapy complete! Our little warrior has really fought this LCH and I feel so proud of him! Three weeks after week 52, we will have follow-up scans to check his progress and make sure that all of his tumors and LCH is in control and gone. If so, then we can have his port removed. That will be so exciting! We will celebrate for sure. I've been thinking as to how, but have decided to not jump too far ahead just yet. We'll celebrate when we know for sure that we have reason to. I believe that we were told that the most likely time for his LCH to recurr is 6-12 months after therapy is complete. We will have follow-up clinic visits every three months for at least the first year and he will probably be followed until he is six or seven years old. We have heard from so many other Histiocytosis families and know of the likelihood of recurrence. We just pray that Benjamin stays LCH-free after October!!! As for today, we just feel thankful and really enjoy the little grin on his face!
